This chapter considers the ways in which whiteness as a skin color and ideology becomes a dominant level that sets the background against which all things, people and relations appear. Drawing on Merleau-Ponty's phenomenology, it takes up a series of films by Bruce Nauman and Marlon Riggs to consider ways in which this level is phenomenally challenged providing insights into the embodiment of racialization.

Phenomenally strong artworks have the potential to anchor us in reality and to cultivate our perception. For the most part, we barely notice the world around us, as we are too often elsewhere, texting, coordinating schedules, planning ahead, navigating what needs to be done. This is the level of our age that shapes the ways we encounter things and others. In such a world it is no wonder we no longer trust our senses. But as feminists have long argued, thinking (...) grounded in embodied experience can be more open to difference; such embodied thinking helps us to resist the colonization of a singular, only seemingly neutral, perspective that closes down living potentialities. (shrink)

In this volume we situate the future directions of feminist phenomenology in the here and now. We contend that in this moment feminist phenomenology is well positioned to take a leading role, not simply in terms of consolidating existing feminist methodologies but also in engaging the difficult task of thinking through the actual in the fullness of its relational, agential, ontological, experiential, and fleshly being, thereby opening up future possibilities. We also think there is some urgency to this claim. For (...) many, faith in the rational human subject has been shattered by the events of twentieth and twenty-first centuries’ worldwide conflicts and increasing sectarianism. The concept of the subject as such is either obsolete or needs to be dynamically rethought. The current options appear to include resuscitating the rational liberal subject or agent, acknowledging limited agency in the performativity of language and gesture, or recognizing the agency of matter. We want to argue instead for a feminist phenomenological approach that begins with multiple, meaningful points of view on relational being. (shrink)

Helen Fielding considers how the repetition of the same can be phenomenally shifted. Considering the phenomenon of death by suicide in response to cyberbullying, she asks how cyberspace as a system can be opened up and become more responsive to the living affect of young women subjected to abuse. At the heart of this problem is the breakdown of personal time into objective time, whereby the inexhaustible potentiality of the living world is collapsed into the indifferent infinity of (...) the possible that, unconnected to living existence, is ultimately a closed system. (shrink)

Helen Fielding, in examining Yael Bartana’s video art works, in particular, Wild Seeds (2005), argues that politics seem to privilege the temporal, and video art thus lends itself to this enactment. Drawing upon Hannah Arendt, she concludes that the in-between, while a space and not a territory, is more a spacing, a taking place between people “no matter where they happen to be” than a place as such. In Bartana’s works, the temporal aspect of video allows her to (...) open up a time-space, or rather a spacing as a relation rather than a place. It is a spacing that takes place only when the art work sets to work in its engagement with viewers, that is, when the video is playing in a public space. Moreover, Bartana generally takes up temporally circumscribed events that are deeply embedded in the past, yet show up either disjuncture or parallels between national identity and individual embodied narratives. While national identity might rely upon fusion, Bartana’s videos upset that identity by opening up a spacing where identity can be questioned. Filming events such as a demonstration, an initiation into military weapons training, as well as play, her videos draw upon ritualized events that, in their repetition, are often meant to work performatively at a corporeal level to create a national and cultural unity. Her videos affectively and phenomenally draw the viewer into the corporeal experience of these rituals in order to show up the ruptures; indeed, they seem to suggest that it is at the level of the corporeal that this cohesion can both be effected and also undone. In other words, rather than focusing on national identity which is exclusive and hence spatial, corporeal being-with is temporal—the polis is figured as embodied intermittent relations or spacings rather than as an actual territory or space. -/- . (shrink)

What are the ethical, political and cultural consequences of forgetting how to trust our senses? How can artworks help us see, sense, think, and interact in ways that are outside of the systems of convention and order that frame so much of our lives? In Cultivating Perception through Artworks, Helen Fielding challenges us to think alongside and according to artworks, cultivating a perception of what is really there and being expressed by them. Drawing from and expanding on the (...) work of philosophers such as Luce Irigaray and Maurice Merleau-Ponty, Fielding urges us to trust our senses and engage relationally with works of art in the here and now rather than distancing and systematizing them as aesthetic objects. Cultivating Perception through Artworks examines examples as diverse as a Rembrandt painting, M. NourbeSe Philip's poetry, and Louise Bourgeois' public sculpture, to demonstrate how artworks enact ethics, politics, or culture. By engaging with different art forms and discovering the unique way that each opens us to the world in a new and unexpected ways, Fielding reveals the importance of our moral, political, and cultural lives. (shrink)

This chapter is a study on Luce Irigaray’s engagement with Martin Heidegger’s approach to language. Although language is central to both thinkers, rather than privileging language in terms of the poëtic event of being, the arising of something out of itself, Irigaray reveals how language is privileged in terms of its promise of dialogue between two who are different. This difference provides for a limit to what can be known or recognized, as well as for a creative potentiality that is (...) directed towards the future. (shrink)

This chapter is a study on Luce Irigaray’s engagement with Martin Heidegger’s approach to language. Although language is central to both thinkers, rather than privileging language in terms of the poëtic event of being, the arising of something out of itself, Irigaray reveals how language is privileged in terms of its promise of dialogue between two who are different. This difference provides for a limit to what can be known or recognized, as well as for a creative potentiality that is (...) directed towards the future. (shrink)

How do permanent artworks installed in public places shape the relations that take place around them? Drawing upon the works of Maurice Merleau-Ponty and Luce Irigaray I claim that two public artworks, Richard Serra’s Tilted Spheres (2002-2004) and a bronze casting of Louise Bourgeois’ Maman (1999) work to open up embodied being and to creatively transform reality. Serra’s work reveals an important aspect of public space, that of the space/time of the anonymous body, as well as the ways in which (...) a shared and hence relational embodied perception is necessary for dwelling. Bourgeois’ Maman reveals possibilities for helping us to think out what it might mean to share the same world even as we dwell in different worlds, in a space/time that we cultivate as our own. (shrink)

Distinguished feminist philosophers consider the future of feminist phenomenology and chart its political and ethical future in this forward-looking volume. Engaging with themes such as the historical trajectory of feminist phenomenology, ways of perceiving and making sense of the contemporary world, and the feminist body in health and ethics, these essays affirm the base of the discipline as well as open new theoretical spaces for work that bridges bioethics, social identity, physical ability, and the very nature and boundaries of the (...) female body. Entanglements with thinkers such as Arendt, Beauvoir, Merleau-Ponty, Heidegger and Deleuze are evident as they reveal new directions for productive philosophical work. Grounded in the richness of the feminist philosophical tradition, this lively volume represents a significant opening to the possible futures of feminist phenomenological research. (shrink)

In this essay, which is preceded by an interview with the translator, Luce Irigaray revisits her earlier critique of Maurice Merleau-Ponty’s privileging of the visible, but also takes further her own thinking by drawing specifically on the issues raised within the context of painting and the creation of artworks. The focal point of her discussion is Merleau-Ponty’s essay on art, “Eye and Mind.”.

This chapter is an examination of the debate around essences in feminist philosophy and theorizing. Here, essences are rethought through Merleau-Ponty’s phenomenology as carnal or embodied essences. As such, embodied essences are found at the joints, the hollows that are not inside us but that connect us, so that we are not isolated within cultural and historical zones. Embodied essences can be taken up in language as idealities.

This paper explores the ethical insights provided by Anne Truitt's minimalist sculptures, as viewed through the phenomenological lenses of Hannah Arendt's investigations into the co-constitution of reality and Maurice Merleau-Ponty's investigations into perception. Artworks in their material presence can lay out new ways of relating and perceiving. Truitt's works accomplish this task by revealing the interactive motion of our embodied relations and how material objects can actually help to ground our reality and hence human potentiality. Merleau-Ponty shows how our prereflective (...) bodies allow incompossible perceptions to coexist. Yet this same capacity of bodies to gather multiple perceptions together also lends itself to the illusion that we see from only one perspective. If an ethical perspective becomes reified into one position, it then becomes detached from reality, and the ethical potential is actually lost. At the same time, phenomenologically understood, the real world does not exist in terms of static matter, but is instead a web of contextual relations and meanings. An ethics that does not take embodied relations into account—that allows for only one perspective—ultimately loses its capacity for flexibility, and for being part of a common and shared reality. (shrink)

The development of bioethics primarily at the cognitive level further perpetuates the tendency to construe all aspects of our lives, including our bodies, as technical systems. For example, if we consider the moral issue of organ sales without taking our embodiment into account, there appear to be no sound arguments for opposing such sales. However, it is important to consider the aspects of the phenomenal body that challenge rational deliberation by exploring an embodied approach to the ethical dilemma produced by (...) a proposed kidney exchange as presented in one of Krzysztof Kieslowski's Dekalog films. What is sought is a description of a body-measure that would serve as a critique of strictly cognitive bioethical deliberations. (shrink)

Irigaray turns to Merleau-Ponty's intuitions about the perception of color to develop her own insights into the creative emergence of sexuate identity. As a quality of the flesh, color cannot be reduced to formal codes. The privileging of word and text inherent to Western culture suppresses the coming into being of the embodied subject in his or her own situated context. Color, tied as it is to a corporeal creativity could provide an important link since it facilitates reflection, and a (...) re-enfleshing through color of a differentiated sexuate identity tied to the imagination as well as to genetic identity. (shrink)

I explore the possibility that the feminine, like art, can be thought in terms of Jean-Luc Nancy’s concept of the singular plural. In Les Muses, Nancy claims that art provides for the rethinking of a technë not ruled by instrumentality. Specifically, in rethinking aesthetics in terms of the debates laid out by Kant, Hegel and Heidegger, he resituates the ontological in terms of the specificity of the techniques of each particular artwork; each artwork establishes relations particular to its world or (...) worlds. What is at stake in the singular plural is the multiplicity of relations that are lost in the unifying gestures that arise out of radical oppositions. I rethink the singular plural through a phenomenological encounter with Barb Hunt’s artwork, Antipersonnel, a collection of hand-knitted replicas of antipersonnel landmines. (shrink)

This paper brings Merleau-Ponty’s phenomenological approach to Sasha Waltz’s dance film S, which focuses on the relation between sexuality and language. Maintaining that movement in cinema takes place in the viewers and not the film, the paper considers how the visual can be deepened to include the ways we move and are moved. Saussure’s insights into language are brought to the sensible, which is here understood in terms of divergences from norms. Though film would seem to privilege vision, viewing this (...) film helps to elucidate Merleau-Ponty’s claim that a film succeeds when it engages the viewer’s embodied understanding, and shifts the norms of the corporeal schema. (shrink)

In order to open new possibilities for bioethics, I argue that we need to rethink our concept of nature. The established cognitive framework determines in advance how new technologies will become visible. Indeed, in this dualistic approach of metaphysics, nature is posited as limitless, as material endowed with force which causes us to lose the sense of nature as arising out of itself, of having limits, an end. In contrast, drawing upon the example of the gender assignment and construction of (...) intersexed infants, I want to suggest for bioethics an understanding of nature that arises not from our scientific explorations, but rather from attending to our situated perceptual encounters with the world which underlie such experimentation; these encounters are too easily overlooked, and yet they are crucial for opening up new ways of thinking. (shrink)

As we know, Merleau-Ponty was struggling with a dynamic shift in his thinking at the premature end of his life. In those last notes he raises the question of how to elaborate a phenomenology of “’the other world’, as the limit of a phenomenology of the imaginary and the ‘hidden’”—a phenomenology that would open onto an invisible life, community, other and culture (VI, Jan. 1960). In her essay on “Eye and Mind”, “To Paint the Invisible”, Luce Irigaray shows why Merleau-Ponty (...) was not yet ready to address this question, why he was not yet ready to engage the limits of his vision posed by the presence of an other. Against Merleau-Ponty’s assertion that the artist has no other task than to bring to appearance the world in the way he corporeally encounters it employing no “other technique than what his eyes and hands discover in seeing and painting”, Irigaray argues that the painter as phenomenologist then appropriates what is other to his vision without reflecting upon a limit to vision, as well as the limit provided by the invisible of an other, an other world. This is not to say that there are no intertwinings with this other, for there are other metabolisms with which we engage the world. Moreover, the sharing of vision with an other can alter the ways I see, challenging cultural complicity, rather than providing evidence that we share the same world. Irigaray is of course not the first to challenge a phenomenological approach to art and to vision—and here I turn specifically to Gilles Deleuze—who is critical of the phenomenological tendency to take on a world given to us by others. His artist, Francis Bacon, focuses on the sensation, which remains unmediated by narration or the feelings of others. Finally, the artworks of abstract expressionist artist Joan Mitchell are considered in the ways that they open up a different time-space; they suggest an other world with which we intertwine without appropriation. Her works, I argue, defy reduction to essences, but also do not rely merely on sensation—for this reason they point in the direction of how to think phenomenology anew. For I do think Merleau-Ponty would be open to these conversations, to these other worlds and other visions. (shrink)

As we know, Merleau-Ponty was struggling with a dynamic shift in his thinking at the premature end of his life. In those last notes he raises the question of how to elaborate a phenomenology of “’the other world’, as the limit of a phenomenology of the imaginary and the ‘hidden’”—a phenomenology that would open onto an invisible life, community, other and culture. In her essay on “Eye and Mind”, “To Paint the Invisible”, Luce Irigaray argues that Merleau-Ponty was not yet (...) ready to address this question, of the limits posed to his vision by the presence of an other. The artworks of abstract expressionist artist Joan Mitchell are considered in the ways that they open up a different time-space suggesting an other world with which we intertwine without appropriation. Her works, I argue, defy reduction to essences, but also do not rely merely on sensation—for this reason they point in the direction of how to think phenomenology anew. For I do think Merleau-Ponty would be open to these conversations, to these other worlds and other visions. (shrink)

As people age their actions often become entrenched—we might say they are not open to the new; they are less able to adapt; they are stuck in a rut. Indeed, in The Coming of Age (La Vieillesse) Simone de Beauvoir writes that to be old is to be condemned neither to freedom nor to meaning, but rather to boredom (Beauvoir 1996, 461; 486). While in many ways a very pessimistic account of ageing, the text does provide promising moments where her (...) descriptions do capture other possibilities for aged existence. In particular, I turn to Beauvoir’s suggestion that habit can take on a “kind of poetry” since it merges past, present and future in a sense of eternity that the present moment now lacks with its limited futural horizon (468; 492). In this paper, I draw out, delineate, and further explore this phenomenological reconfiguration of the present that she gestures towards through a consideration of the intensification and modification of the present through habit. Drawing as well upon Merleau-Ponty’s insights into the phenomenal body, I argue that poetical habit is an active passivity that allows for the spontaneity of the new out of the sedimentation of corporeal memory, and for the attentive perception of what appears in the present. To disrupt someone’s habitual life is to unanchor that life from the world, from an identity shaped by repetition, by the constancy of a shared reality of things, that is, from the spatial-temporal process of inhabitation, and thus from her ability to engage with others and to disclose the world. (shrink)

Distinguished feminist philosophers consider the future of their field and chart its political and ethical course in this forward-looking volume. Engaging with themes such as the historical trajectory of feminist phenomenology, ways of perceiving and making sense of the contemporary world, and the feminist body in health and ethics, these essays affirm the base of the discipline as well as open new theoretical spaces for work that bridges bioethics, social identity, physical ability, and the very nature and boundaries of the (...) female body. Entanglements with thinkers such as Heidegger, Merleau-Ponty, Beauvoir, and Arendt are evident and reveal new directions for productive philosophical work. Grounded in the richness of the feminist philosophical tradition, this work represents a significant opening to the possible futures of feminist phenomenological research. (shrink)

The western philosophical tradition, with its focus on universal concepts and a presumed neuter, but ultimately male subject, has only relatively recently become open to the question of alterity, in particular the alterity of woman as the other of man. The essays of this volume reflect in particular on the ethical implications of taking the feminine other into account. This necessitates a rethinking of the implicit structures of Western philosophy which continue to exclude women as subjects who contribute to the (...) conceptualization of world and society. This volume, which gives voice to women philosophers, is a contribution to that task. (shrink)

Irigaray's insistence on sexual difference as the primary difference arises out of a phenomenological perception of nature. Drawing on Heidegger's insights into physis, she begins with his critique of the nature/culture binary. Both philosophers maintain that nature is not matter to be ordered by technical know-how; yet Irigaray reveals that although Heidegger distinguishes physis from techn in his work, his forgetting of the potentiality of matter, the maternal-feminine, and the two-fold essence of being as sexual difference means that his own (...) concept of physis can be understood as another techn. Focussing in particular upon Heidegger's interpretation of Aristotle's privileging of morphé over hylé as a description of presencing into appearance, I show that for Irigaray the movements of presencing and absencing emerge out of a metaphysics that does not take into account the fluidity, the mixtures and interpenetrations of a nature that is limited by fecundity not by death. Our oblivion to nature is the greatest danger, and thus attending to our embodied and hence sexuate nature holds the promise of a new age, since it is rooted in the possibilities of the flesh revealed through the cultivated perception of sexual difference. (shrink)

"Disillusioned with life as a literary publicist in London, as well as with her hotshot, unevolved TV presenter boyfriend, Rosie Richardson chucks the glitz and escapes to run a refugee camp in the African desert. When famine strikes and a massive refugee influx threatens to overwhelm the camp... Richardson returns to London to organize a star-studded and risky emergency appeal."--Front jacket.

While poststructuralist feminist theorists have clarified our understanding of the gendered subject as produced through a matrix of language, culture, and psycho-sexual affects, they have found agency difficult to ground. I argue that this is because in these theories the body has served primarily as an inscribed surface. In response to this surface body, particular to this age, I have turned to Merleau-Ponty's concept of depth which allows us to theorize the agency crucial to feminist politics. While the poststructuralists' rejection (...) of depth is largely due to its roots in Cartesian rationality, depth is much more than this. Rather than allowing for the impossibility of political action, depth means that as bodily moving and acting subjects we are part of Being, and thus part of the questions raised in this age, even if it is a mark of this age that this tends to be forgotten. (shrink)

Fielding discusses how Michel Foucault and Maurice Merleau-Ponty view spatial and temporal bodies. Foucault dismisses the understanding of an inside soul surrounded by a body.

Fielding discusses how Michel Foucault and Maurice Merleau-Ponty view spatial and temporal bodies. Foucault dismisses the understanding of an inside soul surrounded by a body.

The contributors to this international volume take up questions about a phenomenology of time that begins with and attunes to gender issues. Themes such as feminist conceptions of time, change and becoming, the body and identity, memory and modes of experience, and the relevance of time as a moral and political question, shape Time in Feminist Phenomenology and allow readers to explore connections between feminist philosophy, phenomenology, and time. With its insistence on the importance of gender experience to the experience (...) of time, this volume is a welcome opening to new and critical thinking about being, knowledge, aesthetics, and ethics. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:Journal of the History of Philosophy 40.1 (2002) 134-135 [Access article in PDF] Book Review Merleau-Ponty's Last Vision: A Proposal for the Completion of 'The Visible and the Invisible Douglas Low. Merleau-Ponty's Last Vision: A Proposal for the Completion of 'The Visible and the Invisible.' Evanston, IL: Northwestern University Press, 2000. Pp. xv + 124. Cloth, $75.00. Paper, $19.95. Low sets himself an impossible task, that of completing the (...) uncompleted work of a philosopher whose untimely decease prevented him from doing so himself. What he does succeed in providing is a systematic commentary and a rich integration of Merleau-Ponty's later philosophy. This task itself is important since it is believed by many that Merleau-Ponty's premature death prevented the completion of a book that would have altered the philosophical scene of Paris in the 1960s, and that, moreover, even in its incomplete form, speaks to pressing contemporary philosophical debates on such issues as mind/body dualism, and our relation to nature.The main focus of Low's reading is Merleau-Ponty's philosophy of language, which Low appropriately situates as a mediation between a modernist philosophy of presence and a postmodern Derridean approach to language as the constant deferral of meaning. Language is not the repository for ideal essences, nor do existents have an immediate [End Page 134] coincidence or fusion with things or the world. Indeed, the strength of Merleau-Ponty's philosophy is that he begins with an understanding of human action as meaningfully orientated; to move in the world is to interpretatively encounter it. As Low points out, "an ontological priority [is] granted to the body and the world upon which it opens, for together in lived experience they sustain a field of stable meanings, meanings that are then sublimated in the bodily gesture called speech" (22). Low differs from most Merleau-Ponty scholars in his assumption that there is no significant break between the earlier Phenomenology of Perception, where Merleau-Ponty carefully worked out his descriptions of embodied perception, and the later work that lays out the ontology. Indeed, one accomplishment of Low's book is to show how they fit together, explaining how the insights of the first work are necessary for grounding the ontology Merleau-Ponty began to work out in the later one.Low's book is divided into two sections. The first section, "The Visible and Nature," focuses on how we encounter the world, concluding with a helpful summary and assessment of Merleau-Ponty's ontology. Drawing upon the late essay "Eye and Mind," Low lays out Merleau-Ponty's ontology through his intuition that modern art, unlike the representational focus of Renaissance art, reveals our contact with the world as a "system of exchanges between the sensing and the sensible" (56). Perceiving the artwork is not an intellectual computation of a second-order representation of the world; rather, we see according to the work. It is a bodily process that reveals a reversibility between the viewer and the world. The second section, "The Invisible and Logos," focuses on how these encounters are sublimated or taken up in language. Language is, for Merleau-Ponty, first speech since it relies upon a speaker to take it up, "to sustain and modify it." Signs, gestures, and meaning are folded into one another. As embodied beings, we literally grasp meaning (89).This book would be of enormous benefit to scholars embarking on a reading of Merleau-Ponty's works, and it is one I highly recommend for that purpose. Although it is not original in its interpretations, its value lies in its gathering and integration of complex themes that provide an important introduction to Merleau-Ponty's late philosophy. The book maps out, moreover, a chronology of these themes and the specifics of where to find them; it also shows how the fragments fit together, indicating directions in which they might lead. His writing style is accessible without being simplistic. By interweaving his interpretations with long quotes from... (shrink)

Contemporary emphasis on creating culturally relevant and context specific knowledge increasingly drives researchers to conduct their work in settings outside their home country. This often requires researchers to build relationships with various stakeholders who may have a vested interest in the research. This case study examines the tension between relationship development with stakeholders and maintaining study integrity, in the context of potential harms, data credibility and cultural sensitivity. We describe an ethical breach in the conduct of global health research by (...) a arising from the ad-hoc participation of a community stakeholder external to the visiting research group. A framework for reflection is developed from a careful examination of underlying factors and presented with a discussion of consequences and mitigation measures. This framework aims to present lessons learned for researchers working abroad who might face similar situations in their work. (shrink)

Technological innovations such as next generation sequencing and DNA hybridisation enrichment have resulted in multi‐fold increases in both the quantity of ancient DNA sequence data and the time depth for DNA retrieval. To date, over 30 ancient genomes have been sequenced, moving from 0.7× coverage (mammoth) in 2008 to more than 50× coverage (Neanderthal) in 2014. Studies of rapid evolutionary changes, such as the evolution and spread of pathogens and the genetic responses of hosts, or the genetics of domestication and (...) climatic adaptation, are developing swiftly and the importance of palaeogenomics for investigating evolutionary processes during the last million years is likely to increase considerably. However, these new datasets require new methods of data processing and analysis, as well as conceptual changes in interpreting the results. In this review we highlight important areas of future technical and conceptual progress and discuss research topics in the rapidly growing field of palaeogenomics. -/- . (shrink)

Mix & Stir', this book's aim is an endeavour to understand art as being a panhuman phenomenon of all times and cultures; to steer away from the persistent Eurocentric/Western-centric viewpoint towards a transcultural and transnational interconnected model of exchange and processes of interculturalization. Mix & Stir wants to expand this landscape by bringing to the fore new, recalcitrant, queer, idiosyncratic practices and discourses, theories and topics, methods and concerns that open up ways to approach art from a global perspective. Analogous (...) to a cookery book filled with recipes and instruction, Mix & Stir explores new outlooks on contemporary art from global perspectives. It intends to encourage studying art beyond national constraints, cultural dominances, and hierarchies: a voyage similar to that of culinary discovery. The book brings a variety of tastes and flavours to the table, and breaks new ground by allowing innovative, contrary, queer, idiosyncratic practices and discourses, theories and topics, methods, and concerns to access art in its global dimensions. Researchers, curators and artists with a special interest in this topical issue were invited to present, develop, outline, and contemplate compelling frames of reference, both theoretical and artistic, in order to arrive at a true 'world art studies'. Their contributions are structured in seven thematic fields: Undecidability and Spectatorship, Collectives, Circulations, Exhibitions, Artists at Work, Postcolonial Perspectives, and Deep Art History. The reader is invited to explore the vast supply of dishes, to taste and test the aromas and to feast. (shrink)

Neurosurgery for psychiatric disorders, also sometimes referred to as psychosurgery, is rapidly evolving, with new techniques and indications being investigated actively. Many within the field have suggested that some form of guidelines or regulations are needed to help ensure that a promising field develops safely. Multiple countries have enacted specific laws regulating NPD. This article reviews NPD-specific laws drawn from North and South America, Asia and Europe, in order to identify the typical form and contents of these laws and to (...) set the groundwork for the design of an optimal regulation for the field. Key challenges for this design that are revealed by the review are how to define the scope of the law, what types of regulations are required, and how to approach international harmonization given the potential migration of researchers and patients. (shrink)

The development of the Functional Genomics Investigation Ontology (FuGO) is a collaborative, international effort that will provide a resource for annotating functional genomics investigations, including the study design, protocols and instrumentation used, the data generated and the types of analysis performed on the data. FuGO will contain both terms that are universal to all functional genomics investigations and those that are domain specific. In this way, the ontology will serve as the “semantic glue” to provide a common understanding of data (...) from across these disparate data sources. In addition, FuGO will reference out to existing mature ontologies to avoid the need to duplicate these resources, and will do so in such a way as to enable their ease of use in annotation. This project is in the early stages of development; the paper will describe efforts to initiate the project, the scope and organization of the project, the work accomplished to date, and the challenges encountered, as well as future plans. (shrink)

Supported decision-making has been promoted at a policy level and within international human rights treaties as a way of ensuring that people with disabilities enjoy the right to legal capacity on an equal basis with others. However, little is known about the practical issues associated with implementing supported decision-making, particularly in the context of dementia. This study aimed to understand the experiences of people with dementia and their family members with respect to decision-making and their views on supported decision-making. Thirty-six (...) interviews were undertaken with fifty-seven participants across three states in Australia. Interpretative Phenomenological Analysis was used as the methodological approach, with relational autonomy as a theoretical perspective. We identified two overarching themes relating to participants’ experiences with decision-making: “the person in relationship over time” and “maintaining involvement.” Participant views on the practical issues associated with supported decision-making are addressed under the themes of “facilitating decision-making,” “supported decision-making arrangements,” “constraints on decision-making,” and “safeguarding decision-making.” While participants endorsed the principles of supported decision-making as part of their overarching strategy of “maintaining involvement” in decision-making, they recognized that progressive cognitive impairment meant that there was an inevitable transition toward greater involvement of, and reliance upon, others in decision-making. Social and contextual “constraints on decision-making” also impacted on the ability of people with dementia to maintain involvement. These themes inform our proposal for a “spectrum approach” to decision-making involvement among people living with dementia, along with recommendations for policy and practice to assist in the implementation of supported decision-making within this population. (shrink)

Supported decision-making has been promoted at a policy level and within international human rights treaties as a way of ensuring that people with disabilities enjoy the right to legal capacity on an equal basis with others. However, little is known about the practical issues associated with implementing supported decision-making, particularly in the context of dementia. This study aimed to understand the experiences of people with dementia and their family members with respect to decision-making and their views on supported decision-making. Thirty-six (...) interviews were undertaken with fifty-seven participants across three states in Australia. Interpretative Phenomenological Analysis was used as the methodological approach, with relational autonomy as a theoretical perspective. We identified two overarching themes relating to participants’ experiences with decision-making: “the person in relationship over time” and “maintaining involvement.” Participant views on the practical issues associated with supported decision-making are addressed under the themes of “facilitating decision-making,” “supported decision-making arrangements,” “constraints on decision-making,” and “safeguarding decision-making.” While participants endorsed the principles of supported decision-making as part of their overarching strategy of “maintaining involvement” in decision-making, they recognized that progressive cognitive impairment meant that there was an inevitable transition toward greater involvement of, and reliance upon, others in decision-making. Social and contextual “constraints on decision-making” also impacted on the ability of people with dementia to maintain involvement. These themes inform our proposal for a “spectrum approach” to decision-making involvement among people living with dementia, along with recommendations for policy and practice to assist in the implementation of supported decision-making within this population. (shrink)

Causation is a central topic in many areas of philosophy. In metaphysics, philosophers want to know what causation is, and how it is related to laws of nature, probability, action, and freedom of the will. In epistemology, philosophers investigate how causal claims can be inferred from statistical data, and how causation is related to perception, knowledge and explanation. In the philosophy of mind, philosophers want to know whether and how the mind can be said to have causal efficacy, and in (...) ethics, whether there is a moral distinction between acts and omissions and whether the moral value of an act can be judged according to its consequences. And causation is a contested concept in other fields of enquiry, such as biology, physics, and the law. This book provides an in-depth and comprehensive overview of these and other topics, as well as the history of the causation debate from the ancient Greeks to the logical empiricists. The chapters provide surveys of contemporary debates, while often also advancing novel and controversial claims; and each includes a comprehensive bibliography and suggestions for further reading. The book is thus the most comprehensive source of information about causation currently available, and will be invaluable for upper-level undergraduates through to professional philosophers. (shrink)

"Open Democracy envisions what true government by mass leadership could look like."—Nathan Heller, New Yorker How a new model of democracy that opens up power to ordinary citizens could strengthen inclusiveness, responsiveness, and accountability in modern societies To the ancient Greeks, democracy meant gathering in public and debating laws set by a randomly selected assembly of several hundred citizens. To the Icelandic Vikings, democracy meant meeting every summer in a field to discuss issues until consensus was reached. Our contemporary representative (...) democracies are very different. Modern parliaments are gated and guarded, and it seems as if only certain people—with the right suit, accent, wealth, and connections—are welcome. Diagnosing what is wrong with representative government and aiming to recover some of the lost openness of ancient democracies, Open Democracy presents a new paradigm of democracy in which power is genuinely accessible to ordinary citizens. Hélène Landemore favors the ideal of “representing and being represented in turn” over direct-democracy approaches. Supporting a fresh nonelectoral understanding of democratic representation, Landemore recommends centering political institutions around the “open mini-public”—a large, jury-like body of randomly selected citizens gathered to define laws and policies for the polity, in connection with the larger public. She also defends five institutional principles as the foundations of an open democracy: participatory rights, deliberation, the majoritarian principle, democratic representation, and transparency. Open Democracy demonstrates that placing ordinary citizens, rather than elites, at the heart of democratic power is not only the true meaning of a government of, by, and for the people, but also feasible and, today more than ever, urgently needed. (shrink)

In a world of rapid technological advances, the moral issues raised by life and death choices in healthcare remain obscure. _Life and Death in Healthcare Ethics_ provides a concise, thoughtful and extremely accessible guide to these moral issues. Helen Watt examines, using real-life cases, the range of choices taken by healthcare professionals, patients and clients which lead to the shortening of life. The topics looked at include: * euthanasia and withdrawal of treatment * the persistent vegetative state * abortion (...) * IVF and cloning * life-saving treatment of pregnant women Clearly written and insightful, _Life and Death in Healthcare Ethics_ presupposes no prior knowledge of philosophy. It will be of interest to anyone confronting healthcare ethics for the first time, or seeking to develop his or her understanding of some core topics in the field. (shrink)